It’s been such a long time between posts that I had a whole draft written with updates on the whole family, extended family and cousins half removed, but then I realised that none of it mattered that much or was relevant or made sense and decided to give an update on Ruby and her hip dysplasia because that might actually be helpful to someone! Phew, here goes.
Basically Ruby is doing awesome! Her gross motor skills are coming along to the point that she is pretty irritable most of the time lately – she really just wants to be moving around like a normal bub but isn’t coordinated enough to work that out in the harness.
She is sitting up and swiveling about and can get from her tummy back to sitting with no problems. She is waving and talking and has two little teeth. I’m really enjoying her funny personality coming through, and realising she is actually quite a determined little soul in her own quiet way.
Sure, she is still very cruisy and easy but we are seeing glimpses of the little toddler that she will become.
ANYWAY the BIG news with Ruby is that we are 10 weeks in with the Pavlik Harness and have been told she will definitely have it removed at 12 weeks. So two weeks to go! Based purely on physical examination she is able to achieve full abduction (basically the starfish position), which a truly displaced hip wouldn’t be able to manage. We are still waiting on an ultrasound and an X-ray, but regardless of that will be getting the harness off and reassessing once she is walking.
I know that this won’t be the “end” of the hip journey – it will need constant monitoring and we still have that “worst case scenario” that she will need further treatment but her surgeon thinks that is unlikely. We’re just crossing our fingers and doing as we are told. We’ve been really diligent with the harness and the OT and hopefully that will pay off. Ruby’s case was always classed as moderate, which gives me hope too.
Honestly, I just feel lucky. I’ve been in hospital and doctors waiting rooms non stop for the last few months and I’ve seen such a range of cases, so many worse than Ruby’s. I’ve seen a little boy covered head to toe in burns after playing with a flammable blanket near a heater. I’ve seen kids in wheelchairs who are unable to communicate. I’ve seen so many parents who have every excuse to be worn out and despondent but manage to keep a smile on their face. Being in the orthopaedic clinic we have also seen LOTS of cheeky little monkeys with broken bones, and am just waiting until the day I’m inevitably there with Walter the wild.
I’ve also met so many people who’ve shared their own hip dysplasia stories with me. The Mum from school who still walks with a limp as hers was never corrected. The (very, very fit) Mum at the bus stop who spent the first six months of her life in a double nappy. The visiting Grandfather who explained that the region he is from in France is very well known for producing babies with hip dysplasia and was all too familiar with Ruby’s harness. I’ve also met lots of people who have no idea about hip dysplasia (don’t worry, I was one of them too) and have grown only a little weary of explaining the condition. I do hope I would have had more tact than to assume someone’s baby had broken both her legs but you never know.
As far as Ruby’s concerned, she’s happy and doesn’t know any different. And I like to think she already has a pretty interesting life story, for someone so young. A huge shout out to the doctors, nurses and OT’s at The Duchess of Kent in Hong Kong, who have all been pretty fabulous.
We are all so excited to see what’s next for Ruby once the harness is removed. Wish us luck!